Pre-Conditions for the Growth of Addiction Across the United States, opioids remain the leading driver of drug overdose deaths, with synthetic opioids like fentanyl responsible for the majority of fatalities in recent years, according to national CDC data. Marijuana is the most commonly used federally illegal drug, especially among young adults, and use has increased […]
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Porphyria and Porphirins Abstracts
Search Results Check all Abstracts Selected Titles DIFFERENTIATION BETWEEN SPORADIC AND FAMILIAL PORPHYRIA CUTANEA TARDA – (volume 52-2003) Aarsand AK1, Brun A1, Boman H2, Sandberg S1 WITHIN-SUBJECT BIOLOGICAL VARIATION OF THE URINARY EXCRETION OF ALA, PBG AND PORPHYRINS IN ACUTE INTERMITTENT PORPHYRIA – (volume 52-2003) Aarsand AK1, Petersen PH2, Sandberg S1 TIN MESOPORPHYRIN […]
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PORFIRIA AGUDA
Información para personas con porfiria aguda intermitente, porfiria variegata o coproporfiria hereditaria y sus familias. SUMARIO 1. ¿QUÉ ES LA PORFIRIA AGUDA? 2. ¿CÓMO ES UN ATAQUE AGUDO DE PORFIRIA? 3. ¿CUÁNTOS TIPOS DE PORFIRIA EXISTEN? 4. ¿CÓMO SE HEREDA LA PORFIRIA AGUDA? 5. ¿QUÉ RIESGO DE PRESENTAR SÍNTOMAS TIENEN LOS QUE HAN HEREDADO UN […]
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PORFIRIA ACUTA
Informazioni utili per pazienti affetti da porfiria acuta intermittente, porfiria variegata o coproporfiria ereditaria e per le loro famiglie. TITOLI 1. COS’E’ LA PORFIRIA ACUTA? 2. COS’È L’ATTACCO ACUTO DI PORFIRIA? 3. COME SI EREDITA UNA PORFIRIA ACUTA? 4. QUAL È IL RISCHIO DI AVERE SINTOMI PER UNA PERSONA CHE ABBIA EREDITATO UN GENE PER […]
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ACUTE PORFYRIE
Informatie voor personen met acute intermitterende porfyrie, porphyria variegata of hereditaire coproporfyrie en voor hun familieleden. INHOUD 1. WAT IS ACUTE PORFYRIE ? 2. WAT IS EEN ACUTE AANVAL VAN PORFYRIE ? 3. HOEVEEL VERSCHILLENDE SOORTEN PORFYRIE ZIJN ER ? 4. HOE WORDT ACUTE PORFERIE GEËRFD ? 5. HOE GROOT IS DE KANS DAT EEN […]
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THE PORPHYRIAS
DEFINITION The porphyrias are a group of disorders of the heme biosynthesis pathway that present with acute neurovisceral symptoms, skin lesions or both. All porphyrias result from partial deficiency of one of the enzymes of heme biosynthesis and, apart from the sporadic form of porphyria cutanea tarda, are inherited in monogenic patterns. Accurate diagnosis of […]
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DRUGS ON THE UNSAFE LIST
Drugs that should be avoided in the acute porphyrias Here is a list of drugs that are regarded as UNSAFE in the acute porphyrias. If your first choice drug is on the unsafe list click here to find a safe alternative If your first choice drug is not on the unsafe list click here to […]
Porphyria Information Resources on the WWW This information is not a complete list of resources. It is intended as a starting point for those interested in finding more information. Porphyria consortium Website:http://www.rarediseasesnetwork.org/porphyrias/ Rare connect Website:https://www.rareconnect.org/ Australia : Porphyria Association Inc The Nerve Centre, 54 Railway Road, Blackburn, VIC, 3130, Australia Tel.: +61 […]
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Frequently Asked Questions:
I have recently had an acute attack of porphyria, is it safe for me to go on holiday abroad ? There is always a risk. The risk may vary on how active your disease is and where you are going on holiday. It is advisable to contact the specialist centre closest to your holiday destination, […]
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DISCLAIMER
About EPI DISCLAIMER Print Confidentiality Confidentiality of data relating to individual patients and visitors to the EPNET Web site, including their identity, is respected by this Web site. The Web site owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site […]