General anaesthesia may be safely undertaken in patients with an acute porphyria (Acute Intermittent Porphyria, Variegate Porphyria or Hereditary Coproporphyria) providing care is taken to select anaesthetic agents that are known to be safe. In those patients in whom it is necessary to proceed with anaesthesia before a definitive diagnosis is made it is best […]
Category: Articles
DRUGS ON THE SAFE LIST
Drugs considered safe for use in the acute porphyrias in alphabetical order This list is based on information from publications, other drug lists and clinical data reported to porphyria centres. Inclusion of a drug does not guarantee that it will be safe in all circumstances. If your drug is on this list it is considered […]
SPECIALIST PORPHYRIA LABORATORY SECTION
It has been decided to set up a network of specialist porphyria laboratories in which there will be collaboration and a quality assurance scheme. All laboratories listed on this website should fulfill the following criteria: Able to distinguish, using biochemical testing, between all types of porphyria Able to offer specialist detailed interpretation of results with […]
SPECIALIST PORPHYRIA LABORATORY SECTION
To access the Porphyria specialist centre click on the city Analyses marked by yellow are required for being classified as an European Specialist Porphyria Centre, in addition to participation in the EPNET EQA scheme. Centres that do not fulfil the criterias are included under the presupposition that they, within two years, will perform all the […]
Porphyria specialist centre of London
Consultant Chemical Pathologist: Dr Vivion Crowley Email: [email protected] Tel: -353-1-4162935 Porphyrin Laboratory: Ms Cindy Darby Email: [email protected] Tel: -353-1-4162058 The laboratory provides a clinical advisory and comprehensive analytical service for the Republic of Ireland. Intermediates of haem biosynthesis are measured in urine, faeces, plasma & whole blood using ion-exchange chromatography, fluorimetry, haematofluorimetry, plasma emission scanning […]
PORPHYRIA AND PORPHYRINS ABSTRACTS
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The information on these web pages provides guidance based on the available evidence. However this evidence is not always complete, which may lead to some degree of uncertainty. It must be made clear that the prescription of drugs to a patient with acute porphyria is entirely at the responsibility of the physician in charge. European […]
Information for physicians
Information for physicians The information on this page is primarily intended for use by healthcare specialists and contains technical terms.
Drugs and porphyria
The information on these web pages provides guidance based on the available evidence. However this evidence is not always complete, which may lead to some degree of uncertainty. It must be made clear that the prescription of drugs to a patient with acute porphyria is entirely at the responsibility of the physician in charge. European […]
SELECTING A DRUG
Drugs and porphyria Selecting a drug Print SELECTING A DRUG We recommend to first check your drug. SAFE LIST
